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 Posted: Wed May 27, 2009 1:00 pm
 As a member of this guild, I've found it resourceful and supportive.
There are many illnesses and diseases out in the world that can have an adverse or debilitating effect on people's lives. Some of these are more of a nuisance, leading to extra clumsiness or problems with expressing oneself. But others are worse, they rob you of your physical faculties but leave your mental ones intact, or destroy your mind and leave your body working normally.
This guild aims to support Gaians who know someone suffering from one of these many diseases, or perhaps are themselves suffering from one of them. We are not doctors, but most of the time we've been there, one way or another.
We also aim to raise awareness. So many of these diseases are not known about, until you know someone affected by them. We hold campaigns to make people realize what is out there, and how research into curing them is badly funded.
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Posted: Wed May 27, 2009 1:55 pm
 Gin offered me spoons when I had none. She offers a great place for us to talk, support one another. Her quest is to spread the word about chronic illness across Gaia in a way that will educate and make people aware of what it's like to live with chronic illnesses.
You see many times those of us with chronic illness are told "but you don't look sick" and the truth is we are sick every day, it doesn't go away. We deal with non-believers, doubters, and in truth we've just tried to make ourselves look as "normal" as possible so that we blend in instead of sticking out. My favorite quote of Gin's is on her front page:
"The sad thing about chronic illness is that the illness is often invisible. If some of the people with chronic illness had it somehow on the outside of their bodies, you would run away screaming, I guarantee you."
Please come and join in, support one another, and share a spoon.
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Posted: Mon Jun 01, 2009 4:13 pm
Madralyn, I think I remember something about that--being invisible, I mean. I found this way long time ago, and just saved it hoping for that rainy day to come. I guess it is here:
  
Also to look towards Hug Soft, Love Strong. That is going to be a big thread (we hope) towards people getting things off their chest, and just learning to trust one another with "their" disease.
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Posted: Thu Aug 27, 2009 2:32 am
Hey, Boldie I just saw that on your post here, you said that you were hoping the Hugs Soft, Love Strong was going to be a place where people would be able to let things off their chest. Well let me just say that not only this has become true, but it's done so much more. Thank you so much, and for anyone who hasn't checked out this thread yet, you should do so without further ado. You come away somewhat in awe of people like Boldie and Madralyn, but also with a smile on your face after reading of the way they live alongside their illnesses. They amaze me every single day. xox
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bittersweet and evocative
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Posted: Fri Sep 11, 2009 2:35 pm
bittersweet and evocative Hey, Boldie I just saw that on your post here, you said that you were hoping the Hugs Soft, Love Strong was going to be a place where people would be able to let things off their chest. Well let me just say that not only this has become true, but it's done so much more. Thank you so much, and for anyone who hasn't checked out this thread yet, you should do so without further ado. You come away somewhat in awe of people like Boldie and Madralyn, but also with a smile on your face after reading of the way they live alongside their illnesses. They amaze me every single day. xox
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Posted: Tue Sep 15, 2009 12:01 pm
The Debilitating Disease Awareness Guild (DDA) is hosting the following event to raise awareness of Motor Neurone Disease, also known as Amyotrophic Lateral Sclerosis (ALS) and Lou Gehrig’s disease.
Time to Defeat was created by the Motor Neurone Disease Association. At the end of British Daylight Savings Time, the clocks go back and suddenly we have an extra hour in the day! The aim is to use that extra hour to do something positive in the fight against Motor Neurone Disease.
On Sunday, October 25th British daylight savings time ends.
The DDA Guild is going to use that hour to inspire a full day of giveaways! Every hour we will have a new giveaway, we have artists who are drawing for free, charities giving away gold, users doing spontaneous donations and of course, the DDA Guild itself will be giving away lots of pretty things!
Lend your support and learn more about Motor Neurone Disease by making sure to please visit this important event!
If you have any questions, please post them here or send a PM to Madralyn or AkibeJosephus (DDA Guild Captain).
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