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A guild to raise awareness about serious illnesses. 

Tags: debilitating, disease, awareness, support, illness 

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diaveborn

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PostPosted: Sun May 31, 2009 1:15 am


Hi everyone, I joined this guild a little while ago, finding it through the Wear the Lilac thread. I wasn't sure what to post to introduce myself, but last night I was having a rough time and I thought about sharing it here.

My boyfriend and I were planning to go to a movie today, and last night I was getting anxious about it. I am never sure about going out - how I will feel, what things I will have to bring to be a bit more comfortable, if I will even be able to go in the first place because maybe I'll sleep badly and not be able to function... Chronic pain and chronic fatigue make everything hard.

Anyone else feel sometimes that it is so frustrating having to think before doing things that other people can do automatically?

But I decided last night not to worry about it. If I didn't end up going it wouldn't be the end of the world. I don't leave the house much and was looking forward to the movie, but it would be okay. So I relaxed...
... and I had a really good sleep last night, which is certainly not a given. And I woke up a bit early, felt good... and got to go to the movie. And it all worked out so perfectly.. I felt more normal than I had in a long time. I think praying about it definitely helped.

Anyway, I just wanted to share some encouragement if anyone is in that situation... don't know if this post will help anybody but I hope so, and if anyone wants to share anything about this or other things I will certainly listen. heart
PostPosted: Sun May 31, 2009 2:23 am


I do think that if you worry about something enough then you end up making yourself feel ill, or making the situation worse than it could be.

I find if I go to work in a bad mood then the day takes sooooo long to pass by.

When I was doing my A-Levels (the exams you take to get in to university) I got myself so stressed that I started to feel really ill, managed to develop palpitations which then lead to insomnia, which then led to even more stress as I was trying to do loads of revision with not much sleep. And even when I had finished the exams I couldn't relax, my brain was wired in to revision mode so doing anything that wasn't "work" made me feel horribly guilty.

Luckily I flew out to to Holland 2 days later and clearly being in a completely different country made my brain realise the exams were over, first night there I slept like a log, no insomnia, no palpitations, no stress, best nights sleep I had had in a month XD

My sister is a born worrier and she tends to feel ill a lot. Headaches, stomach aches, insomnia (she's only 11), the whole shebang.

Have you tried meditation or some form of Yoga (there must be some type that's been developed for people with chronic pain) as I hear they're both very relaxing ^_^

AkibeJosephus
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PostPosted: Sun May 31, 2009 6:27 am


being a worrier definitely does not help! I'm on such a cocktail of anti-depressants/anti-anxiety meds that it makes my head spin.
I'm trying to wean myself off the benzo I'm on though.
and yeah I know what you mean. it is hard thinking about what to do and every little aspect.
but we've gotta remember to use our spoons wisely wink
PostPosted: Tue Jun 09, 2009 10:03 pm


chronic fatigue/ pain...I can sympathize, I have fibromyalgia. And I am also frustrated. If you need to talk I am here. Well, I won't be tomorrow, cause I'm back in the hospital, but I'll be back!!!

imderanged

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